Referenslista
ME/CFS information: http://me-cfs.se
Kanadas koncensusrapport "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols" (Carruthers et al, ISBN 0-7890-2207-9, år 2003) finns i "Journal of Chronic Fatigue Syndrome", http://www.mefmaction.net/documents/journal.pdf
Södra Australiens handledning: "ME/CFS Guidelines - Myalgic Encephalopathy (ME)/Chronic Fatigue Syndrome (CFS) - Management Guidelines for General Practitioners", ISBN 0 7308 9334 0, år 2004, http://www.co-cure.org/AU_CFS.pdf
Bok: Pedriatric Chronic Fatigue Syndrome, Kenny De Meirleir et al,
2006/2007, The Haworth Press, http://www.haworthpress.com
Bok: Chronic Fatigue Syndrome - A Biological Approach, Patrick
Englebienne et al, 2002, CRC Press, ISBN 0-8493-1046-6, http://www.crcpress.com
Bok: Enteroviral and toxin mediated myalgic encephalomyelitis/chronic
fatigue syndrome and other organ pathologies, John Richardson, 2001,
Haworth Medical Press, ISBN 0-7890-1127.
Bok: Chronic Fatigue Syndrome, Genes, and Infection, The Eta-1/Op paradigm,
Roberto Patarca Montero, Haworth Press 2003.
Bok: The clinical and scientific basis of myalgic encephalomyelitis chronic
fatigue syndrome, Byron Hyde, 1992, The Nightinggale Research Foundation (http://www.nightingale.ca).
DVD kit: ME konferensen i London i maj 2006, http://www.investinme.org/IIME%20Campaigning-MEConference%20Review.htm
DVD kit: Endags föreläsning för läkare av Dr. Meirleir, http://www.mefmaction.net/default.aspx?page=demeirleirpatients, Observera att det är NTSC kodning. Fungerar på dator men TVn måste klara NTSC standard.
Tidskrift: Journal of Chronic Fatigue Syndrome, http://www.haworthpress.com/web/JCFS
A New Clinical Entity?, The Lancet, London, Lördag den 26 maj 1956, sid 789-190, http://www.meresearch.org.uk/information/keypubs/Lancet%201956.pdf
Sophia Mirza i England, dog som resultat av ME, http://www.investinme.org/index.html, http://www.investinme.org/Mediatelevision2.htm
R.E.D. Laboratories N.V., Z.1, Researchpark 100, B-1731 Zellik, Belgien,
Phone: +32 (0)2 481 53 24,
Fax: +32 (0)2 481 53 11, http://www.redlaboratories.be/2/index.php
ME/CFS: A Clinical Case Definition and Guidelines for Medical
Practitioners - An overview of the Canadian Consensus Document
Carrthers et al, 2005, ISBN 0-7890-227-9, Haworth Medical Press Inc., http://www.mefmaction.net/documents/me_overview.pdf
Norskt TV inslag om svår ME, TV
program NRK puls, familj Krisner, http://www.investinme.org/Mediatelevision3.htm
Information om forskning kring ME från organisationer
Invest in ME
Research News
http://www.investinme.org/ResearchCurrentProjects.htm
ME Research UK
Gene Research: A Scientific 'Signature' for ME/CFS?
http://www.meresearch.org.uk/research/projects/genesig.html
CFS & FM Support Group of DFW (Dallas Forth Worth) (http://www.dfwcfids.org/index.shtml) ger ut ett nyhetsbrev (http://www.dfwcfids.org/archive/newsletter.pdf) som innehåller en massa intressant information. Två nummer från 1995 (http://www.dfwcfids.org/archive/index.html) innehåller mycket om Cheneys teorier om hjärta hos ME drabbade. Det står om oxidativ påverkan i celler och hur det kan motverkas. Det skall numera också att gå att köpa DVDs med Cheneys föredrag.
Phoenix Rise har en bra samling med information om ME: http://www.phoenix-cfs.org/The%20SITE/mainmenu.htm . Prenumerera på nyhetsbrevet som innehåller sammandrag om forskning om ME varje månad: http://www.phoenix-cfs.org/Phoenix%20Rising%20subscribe.htm
MEsite - en Dansk hemsida - skriver om historian bakom termerna ME och CFS: http://www.mesite.dk/ME-CFShistory.htm
Information om forskning kring ME från media
BBC Saturday,
28 May, 2005
Scientists 'unlock ME
genetics'
http://news.bbc.co.uk/1/hi/health/4580051.stm
NewScientist
21 July 2005
Chronic fatigue is not all in the mind
http://www.newscientist.com/article.ns?id=mg18725093.700
Evening Times
2005-05-05
Research into ME hit by cash crisis
http://www.eveningtimes.co.uk/hi/news/5039240.html
Scotsman
20-May-05
Scottish scientists find 'key to curing ME'
http://news.scotsman.com/scotland.cfm?id=550752005
Vetenskapliga tidskifter
En ny molekyl
funnen som är har en nyckelroll i smärtkänslighet:
http://www.sciencedaily.com/releases/2006/10/061023092055.htm
Referenser till forskningsartiklar relaterad till ME
Long-chain polyunsaturated fatty acids and the
pathophysiology of myalgic encephalomyelitis (chronic fatigue syndrome)
Basant K Puri
J Clin Pathol. Accepted 31 July 2006
http://jcp.bmjjournals.com/cgi/content/abstract/jcp.2006.042424v1
Increased serum IgA and IgM against LPS of
enterobacteria in chronic fatigue syndrome (CFS): Indication for the
involvement of gram-negative enterobacteria in the etiology of CFS and for the
presence of an increased gut-intestinal permeability.
Maes M, Mihaylova I, Leunis JC.
J Affect
Disord. 2006 Sep 26;
Multiple co-infections (Mycoplasma, Chlamydia,
human herpes virus-6) in blood of chronic fatigue syndrome patients:
association with signs and symptoms.
Nicolson GL, Gan
R, Haier J.
APMIS. 2003 May;111(5):557-66.
Exercise capacity and immune function in male
and female patients with chronic fatigue syndrome (CFS).
Snell CR, Vanness JM, Strayer DR, Stevens SR.
In Vivo.
2005 Mar-Apr;19(2):387-90.
Lower serum zinc in Chronic Fatigue Syndrome
(CFS): relationships to immune dysfunctions and relevance for the oxidative
stress status in CFS.
Maes M, Mihaylova I, De Ruyter M.
J Affect
Disord. 2006 Feb;90(2-3):141-7. Epub 2005 Dec 9.
Oxidative stress levels are raised in chronic
fatigue syndrome and are associated with clinical symptoms.
Kennedy G,
Spence VA, McLaren M, Hill A, Underwood C, Belch JJ.
Free Radic
Biol Med. 2005 Sep 1;39(5):584-9.
Chronic fatigue syndrome: assessment of
increased oxidative stress and altered muscle excitability in response to
incremental exercise.
Jammes Y,
Steinberg JG, Mambrini O, Bregeon F, Delliaux S.
J Intern Med. 2005 Mar;257(3):299-310.
Relationship between musculoskeletal symptoms
and blood markers of oxidative stress in patients with chronic fatigue
syndrome.
Vecchiet J,
Cipollone F, Falasca K, Mezzetti A, Pizzigallo E, Bucciarelli T, De Laurentis
S, Affaitati G, De Cesare D, Giamberardino MA.
Neurosci
Lett. 2003 Jan 2;335(3):151-4.
Long-term efficacy of cognitive-behavioral
therapy by general practitioners for fatigue: A 4-year follow-up study.
J Psychosom
Res. 2006 Nov;61(5):601-7.
Leone SS,
Huibers MJ, Kant I, van Amelsvoort LG, van Schayck CP,
Bleijenberg G, Knottnerus
JA.
http://www.elsevier.com/wps/find/journaldescription.cws_home/525474/description#description
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0611A&L=CO-CURE&P=R7452&I=-3
The role of enterovirus in chronic fatigue
syndrome.
Chia JK.
J Clin
Pathol. 2005 Nov;58(11):1126-32.
Clinical activity of folinic acid in patients
with chronic fatigue syndrome.
Lundell K, Qazi S, Eddy L, Uckun FM.
Arzneimittelforschung.
2006;56(6):399-404.
Detection of antibody against Borna disease
virus-p24 in the plasma of Chinese patients with chronic fatigue syndrome by
Western-blot analysis [Article in Chinese]
Li YJ, Wang
DX, Zhang FM, Liu ZD, Yang AY, Ykuta K.
Zhonghua
Shi Yan He Lin Chuang Bing Du Xue Za Zhi. 2003 Dec;17(4):330-3.
Increased neutrophil apoptosis in chronic
fatigue syndrome.
Kennedy G, Spence V, Underwood C, Belch JJ.
J Clin
Pathol. 2004 Aug;57(8):891-3
Influenza vaccination: is it appropriate in
chronic fatigue syndrome?
Sleigh KM, Marra FH, Stiver HG.
Am J Respir
Med. 2002;1(1):3-9.
Diagnostic evaluation of 2', 5'-oligoadenylate
synthetase activities and antibodies against Epstein-Barr virus and Coxiella
burnetii in patients with chronic fatigue syndrome in Japan.
Ikuta K,
Yamada T, Shimomura T, Kuratsune H, Kawahara R, Ikawa S, Ohnishi E, Sokawa Y,
Fukushi H, Hirai K, Watanabe Y, Kurata T, Kitani T, Sairenji T.
Microbes
Infect. 2003 Oct;5(12):1096-102.
Multiple co-infections (Mycoplasma, Chlamydia,
human herpes virus-6) in blood of chronic fatigue syndrome patients:
association with signs and symptoms.
Nicolson GL, Gan
R, Haier J.
APMIS. 2003
May;111(5):557-66.
Mycoplasma blood infection in chronic fatigue
and fibromyalgia syndromes.
Endresen GK.
Department
of Rheumatology, University of Oslo, Norway.
Rheumatol Int. 2003 Sep;23(5):211-5. Epub 2003 Jul 16.
RNase L levels in peripheral blood mononuclear
cells: 37-kilodalton/83-kilodalton isoform ratio is a potential test for
chronic fatigue syndrome.
Tiev KP, Demettre
E, Ercolano P, Bastide L, Lebleu B, Cabane J.
Service de
Medecine Interne, Hopital Saint Antoine, Paris, France.
Clin Diagn Lab
Immunol. 2003 Mar;10(2):315-6.
A six-month trial of valacyclovir in the
Epstein-Barr virus subset of chronic fatigue syndrome: improvement in left ventricular
function.
Lerner AM,
Beqaj SH, Deeter RG, Dworkin HJ, Zervos M, Chang CH, Fitzgerald JT, Goldstein
J, O'Neill W.
School of
Medicine, Wayne State University, Detroit, USA.
Drugs Today
(Barc). 2002 Aug;38(8):549-61.
High prevalence of Mycoplasma infections among
European chronic fatigue syndrome patients. Examination of four Mycoplasma
species in blood of chronic fatigue syndrome patients.
Nijs J,
Nicolson GL, De Becker P, Coomans D, De Meirleir K.
Department
of Human Physiology, Vrije Universiteit Brussel, Belgium.
FEMS
Immunol Med Microbiol. 2002 Nov 15;34(3):209-14.
John Gow
John Gow och Abhijit Chaudhuri i England har tagit/sökt patent på en behandlingsmetod för ME 2006-08-10, http://v3.espacenet.com/textdoc?DB=EPODOC&IDX=WO2006082390&F=0&QPN=WO2006082390
Proton magnetic resonance spectroscopy of basal
ganglia in chronic fatigue syndrome.
Chaudhuri
A, Condon BR, Gow JW, Brennan D, Hadley DM.
Neuroreport. 2003 Feb 10;14(2):225-8
Antiviral pathway
activation in patients with chronic fatigue syndrome and acute infection.
Gow JW, Simpson K, Behan PO, Chaudhuri A, McKay IC,
Behan WM.
Clin Infect Dis. 2001 Dec 15;33(12):2080-1. Epub 2001
Nov 6.
Studies on
enterovirus in patients with chronic fatigue syndrome.
Gow JW, Behan WM, Simpson K, McGarry F, Keir S, Behan
PO.
Clin Infect Dis. 1994 Jan;18 Suppl 1:S126-9.
Kenny De Meirleir - RNase L forskning
Kenny De Meirleir, från Belgien, är en av världens främsta
forskare kring ME. Har har speciellt forskat på RNase L proteinet som är
dysfunktionellt hos ME drabbade. Dr. De Meirleir är forskare och professor i
Fysiologi och Intern medicin på Free University of Brussels i Belgien.
Prof. Dr. De Meirleir
Himmunitas
De Tyraslaan 111
B-1120 Neder-Over-Heenbeek
Belgien
phone : +32-2-266-8740
fax:
+32-2-266-8750
http://www.immunesupport.com/library/showarticle.cfm?id=7245
De Meirleir har gjort en powerpointpresentation om ME. http://www.redlabsusa.com/slideshow.ppt
High prevalence of Mycoplasma infections among
European chronic fatigue syndrome patients. Examination of four Mycoplasma
species in blood of chronic fatigue syndrome patients.
Nijs J,
Nicolson GL, De Becker P, Coomans D, De Meirleir K.
FEMS
Immunol Med Microbiol. 2002 Nov 15;34(3):209-14.
Impairments of the 2-5A synthetase/RNase L pathway in
chronic fatigue syndrome
Nijs J, De Meirleir K.
In Vivo. 2005 Nov-Dec;19(6):1013-21
Chronic
musculoskeletal pain in patients with the chronic fatigue syndrome: A
systematic review
Mira Meeus, Jo Nijs and Kenny De Meirleir
European Journal of Pain 2006
http://www.sciencedirect.com/science/journal/10903801
RED laboratories - RNase L testet
RED laboratories, i Belgien, erbjuder RNase L testet som är positivt på 95% av de ME drabbade:
R.E.D.
Laboratories N.V.
Z.1,
Researchpark 100, B-1731 Zellik - Belgium
Phone: +32
(0)2 481 53 24
Fax: +32 (0)2 481 53 11
http://www.redlaboratories.be/2/index.php?nummer=31
Det går att göra diagnos av ME via blodanalys med relativt stor säkerhet med hjälp av ett screening test (FASTest, Fragmented Actin Serum Test) och ett konfirmatoriskt test (RNase L). Proverna görs av RED laboratories. Se länkar nedan för information.
Detection
of Actin Fragments in Serum: A Rapid Screening Test to Aid in the Diagnosis of
Chronic Fatigue Syndrom. http://www.redlaboratories.be/2/printer.php?nummer=1&tabel=testen
Quantitative
Measurement of RNase L Proteins: The Confirmatory Test to Aid
in the Diagnosis of Chronic Fatigue Syndrome http://www.redlaboratories.be/2/printer.php?nummer=2&tabel=testen
Detection
of Mycoplasma Infection. Using the Polymerase Chain Reaction (PCR) Technique http://www.redlaboratories.be/2/printer.php?nummer=3&tabel=testen
Jonathan Kerr - mRNA forskning
Dr. Jonathan Kerr i England har hittat 16 avvikelser hos halter av mRNA (messenger RNA) hos ME patienter. Dessa avvikelser relaterar till immuno, neurologiska, mitokondrie, apotosis och peroxisome. Dr. Kerr är väldigt optimistisk och hoppas kunna ta fram ett diagnostiskt test. Han tror även det finns möjlighet att hitta ett sätt att bota/lindra ME patienter. Hans första försök på läkemedel är Interferon-beta.
http://www.investinme.org/ResearchCurrentProjects.htm
http://jcp.bmjjournals.com/cgi/content/abstract/58/8/826
Genuttrycksstudierna
av Jonathan Kerr i England
Messenger RNA (mRNA) har studerats hos ME drabbade. mRNa bildas genom avkodning av DNA i cellerna. mRNA "talar om" hur mycket av ett visst protein som skall produceras. Proteinerna som produceras inverkar på cellens metabolism och funktion.
CFS Research
Foundation - England - Newsletter No 10 - Gene Expression studies - Jonathan
Kerr: http://www.cfsrf.com/pdf/Newsletter-10.pdf
CFS Research Fondation - England - Curent Research: http://www.cfsrf.com/research-current.htm
CFS Research Fondation - England - Research Publications:
http://www.cfsrf.com/Publications.htm
CFS Research Foundation - England - Welcome Internet
Page: http://www.cfsrf.com/index.html
Gene expression in peripheral
blood mononuclear cells from patients with chronic fatigue syndrome
N Kaushik,
D Fear, S C M Richards, C R McDermott, E F Nuwaysir, P Kellam, T J Harrison, R
J Wilkinson, D A J Tyrrell, S T Holgate, J R Kerr.
Journal of Clinical Pathology 2005;58:826-832
http://jcp.bmjjournals.com/cgi/content/abstract/58/8/826
Current
research priorities in Chronic Fatigue Syndrome / Myalgic Encephalomyelitis
(CFS/ME): disease mechanisms, a diagnostic test and specific treatments
Kerr JR,
Christian P, Hodgetts A, Langford PR, Devanur LD, Petty R, Burke B, Sinclair
LI, Richards SC, Montgomery J, McDermott C, Harrison TJ, Kellam P, Nutt DJ,
Holgate ST.
J Clin
Pathol. 2006
Aug 25
Chronic fatigue syndrome
Devanur LD, Kerr JR.
J Clin Virol. 2006 Sep 13
Gottfrieskliniken
Gottfrieskliniken är specialicerad på ME och fibromyalgipatienter. De gör diagnos samt har forskning kring ett vaccin för att lindra ME symtomen:
Gottfries Clinic AB
Krokslätts torg 5
431 37 Mölndal
tfn 031 343 23 97
fax031 20 99 38
Läkare: Carl-Gerhard Gottfries , Björn Regland, Olof Zachrisson
Treatment with
staphylococcus toxoid in fibromyalgia/chronic fatigue syndrome—a randomised
controlled trial
Olof Zachrisson, Björn Regland, Marianne Jahreskog,
Michael Jonsson, Margareta Kron and Carl-Gerhard Gottfries
European Journal of Pain Volume 6, Issue 6, December
2002, Pages 455-466
http://www.sciencedirect.com/science/journal/10903801
Övrigt
International
Meeting on "Chlamydia and Mycoplasma Infections in humans" i Ferrara
Italien http://mycoplasmas.cvm.iastate.edu/IOM/ferrara.html